Category Archives: Diabetes

Week 41 Update, 2015

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Hello! Yes, another late post – sorry! I’ve had a crazy-stressful week, with some unexpected medical stuff and a major assignment due in. Now that most of this is out of the way, I’ve finally got time to sit down and write an update…so, here we go:

-I guess I have to be honest – I’m still not doing fantastic about the run of bad luck we’ve had lately, and am finding it pretty hard to talk about it general (except on here, I guess). What’s been hardest for me is seeing how upset my hubby is, and it’s going to be hard to change that until he is able to figure out what he’ll be doing work-wise next year. The feeling of helplessness about the situation is weighing us down, especially when he clearly deserves to be happily and permanently employed in whatever field he decides to follow. I’m still finding myself getting upset every couple of days about how unfair and disappointing it’s been, and that we don’t know what is ahead next for him/us. This could place so much of our future on hold, which we were so ready to start going after next year. We’re trying to find happiness in the simple things, but it’s so difficult to remain positive when careers are a massive part of life, and it’s so uncertain for us at the moment. That being said, we are fortunate to both have steady wages for the rest of the year, so we should be thankful. It’s just a very emotionally exhausting time at the moment. That being said, the love we have for each other is stronger than ever, even through all of this, and we’re so lucky to have each other’s support as we deal with this rough patch in hubby’s work situation. This is making us so strong, and we’re thankful that, no matter what happens, we have each other.

-In light of our dampened spirits, I made it a priority to get outside and exercise last week. I managed to get to Curves three times a week, and have a decent lunch break walk for all my working days last week. I’ve maintained my progress, which is a miracle based on all the stress I’m currently feeling. Exercising really helps me to take my mind off things, or even get it out of my system (even for an hour or two). Now my studies are almost at an end for the year, I’m hoping to resume my normal exercise regime of four times a week, and finally start back at my yoga.

-Earlier this week, I got an unexpected surprise. My diabetes specialists have wanted to put me on a Continual Glucose Monitoring device (CGM) so they can see my blood glucose levels over a 24-hour period. The CGM device is inserted under my skin (like my pump) on the opposite side of my stomach to where my pump is located. The CGM then constantly checks my blood sugars and sends it directly to my pump, where it is graphed and insulin levels adjusted (so, rather than just relying on my blood glucose checks I use my fingers for, we’re getting a crystal-clear view of my sugars for 24 hours over six consecutive days). I am very lucky that I received this device free of charge to try thanks to the efforts of my doctors and the pump company Medtronic. I have always been scared to try out a CGM, as even though it has massive benefits, I was so worried about having something else attached to me. Something else to worry about, and which would make me stick out. Plus, another needle/insertion to not get freaked out about. Anyway, after inserting the CGM with the Medtronic representative, I was really surprised – it was much easier than inserting my insulin pump site! So, I’m glad I finally got over my worries about it – yeah, it means I have more devices on my body, but as hubby says, I’ve “gained more cyborg parts”. Haha.

So far, it’s been a bit of a roller-coaster. I have to pretty much check my levels every hour or so (with preference especially for overnight…goodbye sleep!) for 24 hours as the device calibrates. For the first 12 hours, the device was inaccurately recording I was having hypos, so I was on a mission of monitoring my levels closely. Overnight, the device had an error due to loss of signal, which seemed to result from me accidently bumping the device in my sleep. However, this morning it seems to be monitoring my levels with no issues. It will take some getting used to (and I’m so tired), but I can definitely see the benefits of having a CGM.

However, if I wanted access to this device on a more permanent basis (and for diabetics during pregnancy, it is advised that they wear a CGM for their entire first trimester), it would currently cost $250 a month: something hubby and I could not afford. However, it was discussed on the television show Q&A last night that the government is currently assessing whether this could change to be more affordable in the next budget. However, on the show, Type 1 Diabetes (the auto-immune disease I have) got confused with Type 2 Diabetes, and as a result many audience members and watchers were incorrectly asking why funding should be allowed for a condition caused by obesity and poor diet choices. I’m glad I wasn’t watching, as I would have been infuriated – it’s ridiculous how the media yet again misinterprets Type 1 Diabetes to the general public. Anyway, enough on that – when hubby and I want to have kids, this is something we definitely want to have access to, so as to ensure I have a successful pregnancy and healthy children in the future – it’s pretty much vital. I hope the government can look past the misconceptions of diabetes as a whole and see the benefit and ease of mind this device will bring to so many sufferers like myself.

-As I write this paragraph, I am about to review my final draft of my major assignment for my business class. This case study on social enterprise is worth 45% of my final grade. While I’m surprised about how well I’ve been going so far (I’ll admit – I’m only a few marks off a High Distinction average at the moment), the weighting of this assignment is enough to make me worried. Luckily, I haven’t gone *too* far over the word limit, but have the issue of making sure I haven’t used too many references  (something TurnItIn wasn’t happy about for my last assignment). Anyway, with this class the lecturer discussed the weighting of components of our class work last week, and I was surprised at how in-class participation and discussion was not graded. However, the lecturer assured that while it didn’t have its own grade, it would be considered when giving out final grades. I’ve tried really hard to contribute in class (even though I’m nervous about it most of the time), as well as put in the time each week to contribute to the online discussion boards. So, it’s great to hear that all of the work will *hopefully* pay off. I’m eager to see the timetables for next semester (starting in February) to figure out which subject to do next: currently, I’m tossing up whether I’ll get my compulsory introductory accounting class out of the way, or if I’ll undertake the core class I’m most excited about, which focuses on organisational behaviour. We’ll see once the timetable comes out next month.

-In light of all the stressful situations hubby and I have had to experience over the past few weeks, we’ve started putting more effort into our hobbies – particularly relating to gaming. I have helped hubby set up his podcast (add link) related to his Dungeons and Dragons setting, and we’ve started back with streaming on my channel, doing a casual play-through of Skyrim. Seeing how much happiness and energy these give us after all the bad luck lately has reminded us that it’s important to give yourself time to do the things you enjoy. It’s pretty much commonsense, but we really needed that reminder.

That’s all that’s been happening – or has been decent enough to report on for this week. Thanks for reading!

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Week 37 Update, 2015

 

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Welcome to another week of updates! I feel that yet again time has gotten away from me over the past week. I really wish I had more time to work on my blog and writing projects (to bring lots more different posts here than my usual goal-setting updates). That being said, I’m not getting any less busy, so I need to refocus and try to get myself back into the “funk” of writing a unique, encouraging blog. Here’s hoping I’ll get inspired over the next few weeks.

Anyway, here’s what I’ve been up to over the past week:

-I’ve been gradually getting back into my usual level of exercise with the Curves Complete program; however, I’m still sticking to 3 workouts a week due to some rib pain still being present. Last week I managed to reach the gym and walking goals I set myself. I have had some slight weight gain due to hormones at this particular time of the month, but I’m really hoping I can try and reach a specific weight goal over the next few weeks.

This coming week though, I have an even bigger goal to reach: my 200th workout at Curves. This is pretty incredible for me – this time last year I was reaching 100 workouts. Considering I’ve had pretty much 6 months off due to illness and injury since joining Curves in 2014, I am pretty excited about finally reaching my 200th workout milestone. While I really can’t see much of the progress in my appearance (I’ve lost some centimetres and kilograms, but nothing which I could parade as being a dramatic change), I can clearly see the progress in my health. My diabetes is in the best control I’ve ever seen it as an adult, and I really feel more active. The fact that I’m making an active effort with exercising regularly – even if I’m not losing record amounts of weight, is what makes me feel really proud of what I’ve achieved. I’ve made exercise a habit in my life, and that is such a massive milestone.

-Thanks to the extreme generosity and help of my amazing brother and his wife, my husband and I have finally been able to set up our gaming desktop computer. This is something that occurred based on some gifts we received for Christmas last year, and my husband and I are so thankful. We’re finally able to play so many games which weren’t working on our old/weak-powered laptops, and have a reliable computer to do video editing and streaming. I’m so excited to have a decent desktop computer again, and spent a large amount of time over the weekend playing Skyrim, World of Warcraft and installing the Elder Scrolls Online. Overall, I’m continually reminded of how blessed I am to have such a supportive, kind-hearted family who is happy to help out each other.

-This week, I finally took the plunge and have purchased a product I’ve been wanting to try for a while: Lipsense lipsticks by Senegence. These lipsticks seem to be doing the rounds on all of the Pinup/Retro fashion buy and swap groups I’m a part of on social media. I was a bit curious, as I really want to be wearing lipstick regularly (daily, if possible). I am someone who is a bit of a klutz when it comes to lipstick: I will eat, drink water, talk and, as a result, get lipstick everywhere. The amount of times I have to retouch lipstick (if I try to wear it) has made me really self-conscious about trying to wear it regularly…yet, it’s something I really want to do. Here’s where Lipsense comes in. So many ladies are raving about its staying power, as well as durability through the whole day with eating, drinking, kissing…and no retouches. As a result, I’m going to give it a go and see whether it lives up to the hype it’s caused. I have purchased myself a few shades, and will hopefully work on writing a review on here once I’ve had a bit of an experiment. I will let you know though; I hope they end up being as good as I’ve heard, because this could literally change my life of being too scared of wearing lipstick! 🙂

-I submitted my first postgraduate assignment last week, and am eagerly awaiting the results this week. I’m slightly nervous: I felt that I did a relatively good job on the assignment, but I don’t want to be overconfident either (studying business for the first time ever). In all honesty, I’m worried that I could get terrible results, and I’ll then have to decide whether I hang in there and work extremely hard, or if I give up. It’s tough: being unsure as to whether I actually know what I’m talking about in this new degree, or if I’m a big fake. Here’s hoping the results prove me otherwise, as we have a group assignment next and I don’t want to let the group down. I’m pretty excited about the group assignment, as I have a really great group to work with, along with a fantastic topic.

-To end this week’s post, I will finish on a hopeful note. This week, hubby and I are awaiting some news from his end that will change our future for the better. It will bring us confidence in pursuing our future, and will bring many of our plans for the near-future closer than we think, as well as a hell of a lot of security and hope. I will not reveal any more on here until my hubby finds out more…but we are eagerly awaiting some news and hope with all our might that things will work out how we hope they will.

And that’s all I’ve got this week! Thanks for reading, as always 🙂

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Week 36 Update, 2015

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Hello there! Sorry this week’s post is delayed – I have studying to blame. I’ve managed to just finish writing my first assignment for this session, and finally have some spare time to write up my weekly update. It’s going to be a busy week, so I’m glad I have some time – even if minimal, to catch up with you 🙂 Here’s what I’ve been up to:

-I spent all of Monday at my Diabetes Clinic check-up, with my awesome endocrinologist (the Dean of Medicine for the university in the region, as well as being from Cambridge University), as well as the supportive Diabetes Educator Nurse. I was extremely nervous, as due to being unwell, my diabetes had been all over the place, and as a result I felt my progress towards making my condition more manageable for future plans had come undone. However, my endocrinologist, even after hearing my bad news, was full of positivity and encouragement about how I’ve been going, and is confident I’m still going in the right direction. In fact, my Hba1C is down from 7.9% to 7.5% in the course of three months, which was absolutely shocking to me (I thought, given how many levels I’ve had above 25 mm0l over the past few weeks due to infections/steroids/antibiotics, I’d be doomed!) Considering I was sick for almost a month (of the three months examined), this is amazing results.

The team are also investigating whether they can give me a Continuous Blood Glucose Monitoring Device (CGM for short) to use for a week or so to ensure we can closely monitor my levels 24/7 for a week. This is another device which has to be inserted under my skin and kept clipped onto me like the pump – something I’ve always been scared about doing due to being worried about having too many things connected to me. But, I may finally be confident enough to give it a go if it means I can get my blood glucose levels sorted, especially whilst I’m continuing to lose weight (something which makes diabetes insulin levels dramatically change and need to be adjusted all the time). Overall, the diabetes clinic is really happy with my progress considering how ill I’ve been over the past few weeks. Hubby and I have some work to do to tighten up our carbohydrate counting at meals, but otherwise I’ve been doing a fantastic job checking my blood sugar levels through the day, as well as trying to be more active.

-In light of my recent clinic visit, as well as all of my health issues recently, I’m constantly thinking of how lucky I am to have such a supportive husband who is eager to understand my health issues and to help me. He has gone out of his way to understand how my health needs to be taken care of, as well as researching and working on some projects to help prepare our kitchen/meals better so we are more accurately counting the carbs and sugar levels in our meals.

-As of last week, I’ve returned to the Curves Complete program, going to the gym 3 days a week (returning to 4 days once I no longer have pain in my ribs, which will hopefully be next week). I’ve also started my lunch-time walks again, as the doctors can clearly see the positive difference in my blood sugar levels when I am doing these walks at work. I have also started using the “Calm” app for guided meditation, and have just completed the “7 Days of Calm and Mindfulness” program, which was a great introduction to meditation. Until my ribs are fully recovered, I’m using this app until I can get back to my full yoga routine, however I feel like I will continue to use this app to help me relax before bed, even after I resume yoga.

-Last week, I also completed the 100 day Global Corporate Challenge, which I was participating in through work. Monitoring my daily step intake over 100 days was really motivating for me, even if I spent the last few weeks of the program unwell, meaning I had very little progress. According to the GCC app, I managed to lose 2.8 kilos for the duration of the program, improved my blood pressure and heart health and with my step count intake, travelled from Japan to Peru (virtually). It was quite encouraging seeing the progress of other teams (unfortunately, our team captain only entered ¼ of their steps for the whole program). Overall, it was great to be a participant in the program, and I hope to participate again next year – hopefully when I’m in a better state of health!

-Over the weekend, hubby and I finished watching all seasons of The Great British Sewing Bee. It has definitely left me inspired to get some sewing projects finished, and dedicate more time to developing my sewing skills. Not only will I be able to start developing a unique wardrobe, but I’ll also build my skills and confidence. On my radar, I have a circle skirt from last year which needs to be finished, a dress to hem, and then a new circle skirt pattern to try out on some of my materials. I also am going to try and make some vintage-inspired pyjamas soon. Here’s hoping I can stay on track, and also that I have some epic time management skills to fit this hobby in around study and work.

-My current session of study finishes in November, with the next session not commencing until February next year. As such, I was contemplating if I’d complete a subject via distance in a Summer Session instance, but have decided that I want to take a break over Christmas to spend time with family and relax instead: with all the health issues I’ve had this year, and no holidays, it’s important that I give myself a proper break. I’ll hopefully catch up on some craft projects and cleaning up the house in those months where I have no studies to worry about.

That’s about all I’ve got to report on for this week. Thanks for reading 🙂

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Week 24 Update, 2015

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Hello folks! I was off work today due to my Diabetes Clinic (more detail about that below), so I’ve had a chance to write my blog post a little bit early this week after a weekend filled with bride and bridesmaid dress shopping for a close friend, and family birthday celebrations. Anyway, here’s what I’ve been up to over the past week:

-This week, I’ve managed to lose 900g on Curves Complete! I wasn’t expecting much weight loss due to the long weekend, but this is a pretty good result. At the current rate, I’ll be hitting the lowest weight I’ve had (just before our honeymoon last year) in the next month or two! I’m going to focus on really trying to stick to the Curves Meal Plan this week. Plus, this week I had to make a “healthy pledge” for the rest of the 12 Week Program. I’ve decided that mine will be to not have any soft drink at home – the only time I could have soft drink is if I’m out for a special occasion or such. Otherwise, I’m trying to wean myself off soft drink (and even soda water due to the sodium, as my blood pressure is above normal). So overall, I’m feeling like I’m back into the swing of becoming a healthier me 🙂

-I spent this morning at my Transitional (those between the teenage and adult) Type 1 Diabetes Clinic with hubby. It was hubby’s first time attending one of my clinics, and it was really beneficial for both of us to be there. As my Endocrinologist is on maternity leave, my doctor for the next year is the Professor of Medicine at the University of Western Sydney. Not only does he specialise in Type 1 Diabetes, but he is one of the world’s experts (he was running programs at Cambridge University before coming to Australia) in Type 1 Diabetes and Pregnancy, and Type 1 Diabetes and young adults. Don’t get ahead of yourself reading that – I’m not planning on getting pregnant right now. However, as a Type 1 Diabetic, if I was wanting to have kids any time within the next 5 years (which is pretty true), I need to have my health perfected 2 years prior to even become pregnant or have a successful chance of becoming pregnant and having a healthy child. If there was any doctor who could help me achieve this, it’s the one I saw today. He is the leading doctor in this field, and not only did he want to personally handle my diabetes management now, but he wants to over the next few years to ensure I am able to successfully have children. Not only did he balance out what challenges I’ll be facing, but he also was very encouraging and said that I was doing so very well in exercising and trying to get my levels in control. Today’s clinic session was very informative and helpful for hubby and I…even if we have a lot of work ahead of ourselves.

-Speaking of work, from this week, hubby and I will be stepping up our approach to a healthy lifestyle in line with Diabetes Clinic. From next week, we’ll be taking a stricter approach to our meals and exercise. In order to perfect my blood sugar levels, I am now required to check my levels at least 6-7 times a day. As such, we’ll be setting up a “reward system” to help me achieve this. I now need to give myself my insulin at least 5-10 minutes prior to eating meals, and will now also check my blood sugar levels an hour after eating. We will also be more accurately measuring out our meals, and recording their carbohydrate, sodium and fat content – this is to ensure that I am accurately counting the carbohydrate content of my meals for my insulin rates. I will also be changing my insulin pump rates from calculating based on exchanges to mg of carbohydrate, which is much more accurate. Yes, it’s a lot of changes…but it needs to be done to ensure the future of myself, as well as my family. However, it’s not happening straight away – we’ll be easing ourselves into it over the next week.

-Last week, I managed to get my pre-order of The Elder Scrolls Online: Tamriel Unlimited. I haven’t had a chance to play much yet due to a busy weekend, but from what I’ve played so far (including some time playing the beta version a few months back), I’m very impressed. Once I get paid this week, I will be purchasing the Imperial upgrade, as my character will be an Imperial (I love how the Imperials have no set alliance). I will be making a few YouTube videos of me playing the game – I actually started this last week, however the sound didn’t seem to record very well, and I’m wanting to make a different character anyway once I get the Imperial upgrade. As soon as I get these videos up and running, you’ll hear about it on here.

-I’m still waiting to hear some news about an opportunity that could potentially change future plans for hubby and I. In all honesty, I have a really good feeling about things, but I don’t want to jinx myself. If this went well, it would make things so much better for the future. I’m really hopeful so I can share it all with you!

That’s about all I’ve been up to, until I write some extra blog posts on here other than the weekly updates (rest assured – I’m working on these, sorry!) Thanks for reading 🙂

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What you need to know about having Necrobiosis Lipoidica Diabeticorum

So you have heard me mention NLD recently, and you probably want to know what the hell it is I am talking about. Or maybe you’ve just found out you have NLD and now want to know exactly what you’re in for. Either way, here’s a post letting you know all about it:

Firstly, this post is based purely on MY experience of this chronic medical condition. I am in no way medically qualified and I highly encourage you to speak with a GP or dermatologist if you have this condition to find out what treatment options are available to you.

So, what the hell is NLD?

Necrobiosis Lipoidica Diabeticorum (say that three times in a row!) is a condition with no known cause or cure, and where treatment options vary from person-to-person. It is a skin condition where raised, hardened spots appear on the skin. These can take many forms and are frequently lesions, rashes and ulcers. They most commonly appear on the shins or legs; however, there are cases where these appear on the feet, arms, face and more delicate areas of sufferers.

The name is a bit of a mouthful so I’ll refer to it as ‘good old NLD’, only without the ‘good’ and with a fair bit of the ‘old’. Haha.

NLD is a rare medical condition; however, there is research that shows that it is more common for Type 1 Diabetics to have NLD, although they are unsure why. It is also common enough for an NLD sufferer to be diagnosed with Type 1 or Type 2 Diabetes and it is believed that approximately 0.3% of the diabetic population have NLD. The condition is also linked with those who have rheumatoid arthritis, and sufferers of NLD are warned that they may also develop rheumatoid arthritis.

Despite popular belief, NLD is not caused by poor diabetes control. In fact, my diabetes is the best it’s ever been and my NLD is at its worst. Fantastic diabetes control can help with the healing process; nevertheless, the cause of NLD is not reliant on how well you actually are.

How painful is NLD?

It’s hard to explain the pain of NLD. If the lesion or spot is just a raised, red scar, the discomfort you’ll experience is just an itch or like a rash or dermatitis. However, if you’re like myself and have ulcers that like to open up, the pain is similar to anything from a second to forth degree burn. When my ulcers are open, I generally have a sharp pain in my leg, which is made worse by standing or walking. It’s at its worst when I first wake and it is normally not until lunchtime (and with lots of sitting) that this pain subsides. This pain quickly reappears if I’ve walked too much during the day, or will hang around all day if I’ve slept weirdly on my leg.

How to you treat NLD?

Good question! Treatment options vary with each individual and, from what I have read on some online support groups, there’s no one way that has been entirely successful in clearing up a person’s NLD. There’s suggestions of steroid shots, treatments with topical cortisone, even tanning (what the?!) as ways to treat the condition. I won’t be able to seek a more long-term treatment until my NLD spot has healed completely into a scar again – this could take years – so for me right now it’s about the regular cleaning and dressing of the wound. I find that, for me, the best products to use on a daily basis are Betadine (the iodine in this helps kill any nasty bacteria) and Solugel (this protects the new healthy skin growing across the ulcer and helps immensely with the itchiness!). I am a massive fan of using an Adaptic gauze – which has a slight coating of Vaseline which helps the creams settle in place – and then covering the lot in a cohesive bandage which allows the ulcer to breathe a bit easier than other types of bandages, plus it’s a beige colour which isn’t as noticeable.

Is there a cure for NLD?

In short – no. Not yet. NLD fits into a myriad of other chronic immune conditions where the cause and cure are relatively unknown (or a definitive answer hasn’t been discovered). I’m a bit of a lucky-duck: having three conditions that are all chronic, immune, and based on unknown cause with no known cure. Because of this, many doctors seem to hypothesise that the cause is related to a dodgy immune system (I won’t even try to explain or justify this, as I have no idea), but all medical professionals I have seen have agreed that this condition does not go away. I will have this red, protruding mark on my skin for the rest of my life. When it is closed and ‘healed’ it is similar to a port wine stain in appearance and I know I must one day become accustomed to having yet another aspect of my physical appearance grabbing people’s attention.

What can you do to help someone with NLD?

While having NLD really blows, there are people going through life with worse conditions or experiences to deal with. If anything, NLD has helped me become more compassionate, especially towards those who have medical conditions and are in similar situations and even more so if it’s chronic or immune related. I feel enormously for anyone who, like me, tends to get sick all the time thanks to having a terrible immune system. Naturally, most of us are pretty tough cookies (or we pretend to be); however, it’s really nice to receive support from those who care. So, how can you help someone with NLD, or a similar chronic immune condition? Everyone is different, but I do know the following: those suffering from a chronic illness or condition don’t want sympathy; they want you to understand. Take the time to research and read up on the conditions so you can really acknowledge what the person is going through, as well as considering how this impacts on their day-to-day lives. Knowing that someone has cared enough to take the time to learn about what you have to deal with on a daily basis and to tell you that they ‘understand’, and especially knowing that it’s honest and genuine…that is such a wonderful thing.

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“It’s not a Tamagotchi, damn it!” The 10 things that can annoy every Diabetic with an Insulin Pump.

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  1. You will be asked “Is that a pedometer/pacemaker/pager/tamagotchi?” *facepalm*
  2. Your pump is/was worth more than pretty much everything you own. I remember when I first got my pump in high school and then realising it was worth more than my first car (which I had just bought)…you feel quite nervous having something so valuable just attached to your skirt. I know health insurance in Australia has made pumps way more affordable now, but around the world these beeping machines are still very costy.
  3. You have to ensure you put the pump cap on before hugging your significant other (if you’re not wearing much….) otherwise the scratches the pump site leaves on them will cause unnecessary and awkward questions from others about your antics.
  4. Forget wearing any tummy-revealing outfits in summer (such as a bikini etc) but NOT because it doesn’t suit you (I completely agree that anybody is welcome to wear a bikini, regardless of your body type, if you love yourself and have the confidence!) It’s because of the rashes and scarring of old set pump sites and how irritated they become when the teeniest bit of sweat is nearby.
  5. That moment of panic when you take out an old pump site and blood goes everywhere. Sure, you see blood everyday when testing blood sugar levels, but there’s nothing like having a burst of blood come out of your stomach from nowhere. Try to avoid doing set changes near carpet, or white kitchen counter-tops (I speak from experience, oops).
  6. Feeling like a badass at an airport when having to get special clearance to get through security without going through the x-ray machines….Oh wait, did I say bad ass? I meant pain in the ass.
  7. You can’t really be spontaneous when having a pump. Do your friends want to throw you into a pool? Nope, not happening. Does your significant other suddenly initiate some intimate time? Oh wait…you have to awkwardly take off your pump first. Road trip? You’d better make sure you have enough insulin juice for the trip? Bed time? Nahhhh you need to do a set change first. It makes any spontaneous action attempted by others awkward as you have to prep, regardless.
  8. You’ll never be able to carry a small bag anywhere. If you like to travel, at least 1/3 of your luggage will be taken up with pump supplies (usually double the amount needed for the trip), a spare insulin pump and the myriad of documentation you need to prove that you’re not a terrorist (true story: I travelled through a regional airport in Australia which had absolutely no idea what my pump was, and thought I was trying to do something illegal. Which was annoying.)
  9. Wearing pumps under clothing can be hard. Pumps can be quite heavy, and if you’re only using the band of your undergarments to keep the pump in place, there’s potential for wardrobe malfunctions and accidently dacking yourself. Again, true story.
  10. You find yourself carrying strange things with you on a daily basis for pump maintenance. For example, I always carry AAA batteries (the pump’s battery of choice) and a stack of 5-cent coins (the coins are the perfect size and type of metal to open up the pump’s battery compartment without damaging it).

While there are a lot of annoying things about having an insulin pump (which I thought I’d share on here so you can see the humour), the positives definitely outweigh these things. Since getting an insulin pump in late 2006, I’ve been able to live a relatively normal life. I also can call myself a part cyborg, which is pretty cool. 🙂

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